International Batten Disease Awareness Day Virtual 5k!

June 9th is International Batten Disease Awareness Day!  Our goal is to honor and support those affected by Batten disease and raise awareness.


About this event

Join us as we celebrate families around the world and raise awareness!  BDSRA is hosting the 2021 International Batten Disease Awareness Day Virtual 5K on June 9th, 2021.

What exactly IS a Virtual 5K?

It is just like any other 5K, except there is no official race location. The virtual part of this means no traveling and no early start times! It also means you get to choose where, with whom, and even how you want to complete the 5K.  This 5K can be done at any time leading up to June 9th. It can even be done in increments, keep track of your distance until you hit the 5K.

How to participate to raise funds and awareness

This event is open to individuals of all ages and abilities. Once you register, either as an individual or as part of a team, you are set. During International Batten Disease Awareness Day we will be asking participants to post pictures of themselves on their 5K route. This is completely optional - but since our goal is to bring awareness to Batten disease, we want to do just that. And by using #battenday2021 on your social media posts, we will be able to keep up with the fun. 


Although the deadline to order 2021 Love.Hope.Cure T-shirts has passed, please visit:  to order past years sizes and colors.

(Click here for t-shirt sizing guide, they run small:


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