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UPDATE (11/18/2025): This event has been rescheduled for Tuesday, December 9, at 7 PM EST. If you've already registered, the Zoom link you've received in your registration confirmation email and email reminders is still the correct link to join the session.  

Let’s dive into some research and clinical updates!

After attending the 19th International Congress on Neuronal Ceroid Lipofuscinosis (NCL) and BDSRA Australia’s Family Conference, BDSRA Head of Research & Medical Affairs, Ineka Whiteman, PhD, and Jonathan Cooper, PhD, of Washington University in St. Louis, will recap the events, share updates, and answer your questions. 

Learn more about the events here
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If you need help registering or have questions about this event, please contact us at support@bdsrafoundation.org.
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