BDSRA will hold a Newly Diagnosed & First-Time Conference Attendee Orientation on Tuesday, June 17, at 7:30 PM EDT.
This virtual event will be a casual forum for conversation with families who have recently received a Batten disease diagnosis as well as those who are interested in attending the Annual Family Conference this July. Attendees will receive more information about BDSRA, the disease, helpful resources, the conference, and more during this event.
Please complete the form below and email support@bdsrafoundation.org for any questions and/or issues. Once you register, you will receive the Zoom link to join the session via a confirmation email.
Click here to register for the Annual Family Conference in Lincoln, Nebraska.
