Hosted by Batten parent Heather Dainiak, these chats are a safe space for parents and caregivers of all CLN types in the United States, Canada, and abroad — no pressure, no obligation — just understanding, connection, and a chance to breathe. Choose one of the two upcoming sessions below.
NOTE: You only have to complete the registration form ONCE, and you will receive the Zoom link for all future Coffee Chats. The Zoom link will remain the same for all chats. You will also receive email reminders for each upcoming Coffee Chat.
May Theme: Holding Space for the Joy and Heartache of Parenting a Child with Batten Disease
Dates (choose one session):
- Friday, May 23 at 12 PM EDT
- Tuesday, May 27 at 8 PM EDT
So, grab your coffee or tea, wear your cozy slippers, and let’s chat.
